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TaNyA is NotUrType's blog: "IMO"

created on 11/12/2014  |  http://fubar.com/imo/b360661

        I am a mother, raising a teenage son with ADHD (attention deficit hyperactivity disorder) and ODD (oppositional defiant disorder).  I love him with all my being.  I love his fun personality, his heart, his quirks, his intelligence, and I love him for his flaws, even when I forget to stop and remember that his way of thinking and processing the world is so different from most of us.  It is hard to keep in mind that his attention span is so small when you really just want him to do something that you asked him to do, and that his natural response and reaction is to question, try to get out of doing it, and to be argumentative when it is completely inappropriate to do so. 

 It is not easy to process the social incompetencies that my child faces in school and even with the people that love him.  The strain that it can put between them, myself, and members of my family can be hard, emotional and stressful, especially when it is due to a lack of understanding and empathy.  I find myself getting frustrated with my child for things he cannot ultimately control because these things more often than not, annoy or upset others.  This is where I, as his mother fall short, a lot. 


 Finding balance between appropriate discipline and exercising tolerance when it is appropriate is not always an easy task.  Understanding the way my son processes his environment and finding ways to effectively manage his behaviors or moments of acting out are very challenging, especially when pressure from everyone who thinks they know the best way to 'deal with him' is always there.  Feeling like your child is not liked, appreciated for who they are or loved because of who they are is heartbreaking.  


This has caused me to really think hard about the approach I am taking with my son.  I have done some reading, research, and personal evaluation, and know that raising my son is an ever-evolving process where I must adapt and learn that what is effective today may not be effective tomorrow.  Learning to understand that this is ok, and I am not failing as a parent is my personal struggle and journey in this.  I am hoping that in my journey to teach my son to effectively manage his special way of seeing the world that I will enlighten myself and others to the struggles not only that I and others with children like mine face as a parent, but that my son faces, along with kids like him,  as a child who is not clear on what makes him so different. 

   Let me start with defining the 'disorders' with their signs and symptoms:

ADD/ADHD:

Attention deficit hyperactivity disorder (ADHD) and attention deficit disorder (ADD) symptoms may begin in childhood and continue into adulthood. ADHD and ADD symptoms, such as hyperactivity, implulsiveness and inattentiveness, can cause problems at home, school, work, or in relationships.

Causes:

Genes. Results from several international studies of twins show that ADHD often runs in families. Researchers are looking at several genes that may make people more likely to develop the disorder. Knowing the genes involved may one day help researchers prevent the disorder before symptoms develop. Learning about specific genes could also lead to better treatments.

Children with ADHD who carry a particular version of a certain gene have thinner brain tissue in the areas of the brain associated with attention. This NIMH research showed that the difference was not permanent, however, and as children with this gene grew up, the brain developed to a normal level of thickness. Their ADHD symptoms also improved.

 

Environmental factors. Studies suggest a potential link between cigarette smoking and alcohol use during pregnancy and ADHD in children. In addition, preschoolers who are exposed to high levels of lead, which can sometimes be found in plumbing fixtures or paint in old buildings, may have a higher risk of developing ADHD.

 

Brain injuries. Children who have suffered a brain injury may show some behaviors similar to those of ADHD. However, only a small percentage of children with ADHD have suffered a traumatic brain injuries.

 

Food additives. Recent British research indicates a possible link between consumption of certain food additives like artificial colors or preservatives, and an increase in activity. Research is under way to confirm the findings and to learn more about how food additives may affect hyperactivity.


Signs and Symptoms:

 Inattention, hyperactivity, and impulsivity are the key behaviors of ADHD. It is normal for all children to be inattentive, hyperactive, or impulsive sometimes, but for children with ADHD, these behaviors are more severe and occur more often. To be diagnosed with the disorder, a child must have symptoms for 6 or more months and to a degree that is greater than other children of the same age.

Children who have symptoms of inattention may:

  • Be easily distracted, miss details, forget things, and frequently switch from one activity to another
  • Have difficulty focusing on one thing
  • Become bored with a task after only a few minutes, unless they are doing something enjoyable
  • Have difficulty focusing attention on organizing and completing a task or learning something new
  • Have trouble completing or turning in homework assignments, often losing things (e.g., pencils, toys, assignments) needed to complete tasks or activities
  • Not seem to listen when spoken to
  • Daydream, become easily confused, and move slowly
  • Have difficulty processing information as quickly and accurately as others
  • Struggle to follow instructions.

Children who have symptoms of hyperactivity may:

  • Fidget and squirm in their seats
  • Talk nonstop
  • Dash around, touching or playing with anything and everything in sight
  • Have trouble sitting still during dinner, school, and story time
  • Be constantly in motion
  • Have difficulty doing quiet tasks or activities.

Children who have symptoms of impulsivity may:

  • Be very impatient
  • Blurt out inappropriate comments, show their emotions without restraint, and act without regard for consequences
  • Have difficulty waiting for things they want or waiting their turns in games
  • Often interrupt conversations or others' activities.

Living With:

 

Schedule. Keep the same routine every day, from wake-up time to bedtime. Include time for homework, outdoor play, and indoor activities. Keep the schedule on the refrigerator or on a bulletin board in the kitchen. Write changes on the schedule as far in advance as possible.


Organize everyday items. Have a place for everything, and keep everything in its place. This includes clothing, backpacks, and toys.


Use homework and notebook organizers. Use organizers for school material and supplies. Stress to your child the importance of writing down assignments and bringing home the necessary books.


Be clear and consistent. Children with ADHD need consistent rules they can understand and follow.


Give praise or rewards when rules are followed.  

Children with ADHD often receive and expect criticism. Look for good behavior, and praise it.

 

Some children with ADHD continue to have it as adults. And many adults who have the disorder don't know it. They may feel that it is impossible to get organized, stick to a job, or remember and keep appointments. Daily tasks such as getting up in the morning, preparing to leave the house for work, arriving at work on time, and being productive on the job can be especially challenging for adults with ADHD.

These adults may have a history of failure at school, problems at work, or difficult or failed relationships. Many have had multiple traffic accidents. Like teens, adults with ADHD may seem restless and may try to do several things at once, most of them unsuccessfully. They also tend to prefer "quick fixes," rather than taking the steps needed to achieve greater rewards.

 

 

ODD:


  It may be difficult at times to recognize the difference between a strong-willed or emotional child and one with oppositional defiant disorder. It's normal to exhibit oppositional behavior at certain stages of a child's development. But there is a range between the usual independence-seeking behavior of children and that of oppositional defiant disorder.

Signs of ODD generally begin before a child is 8 years old. Sometimes ODD may develop later, but almost always before the early teen years. When ODD behavior develops, the signs tend to begin gradually and then worsen over months or years.

Your child may be displaying signs of ODD instead of normal moodiness if the behaviors:

 

 

  • Are persistent
  • Have lasted at least six months
  • Are clearly disruptive to the family and home or school environment

The following are behaviors associated with ODD:

  • Negativity
  • Defiance
  • Disobedience
  • Hostility directed toward authority figures

These behaviors might cause your child to regularly and consistently:

  • Have temper tantrums
  • Be argumentative with adults
  • Refuse to comply with adult requests or rules
  • Annoy other people deliberately
  • Blames others for mistakes or misbehavior
  • Acts touchy and is easily annoyed
  • Feel anger and resentment
  • Be spiteful or vindictive
  • Act aggressively toward peers
  • Have difficulty maintaining friendships
  • Have academic problems
  • Feel a lack of self-esteem

In addition, your child isn't likely to see his or her behavior as defiant. Instead, your child will probably believe that unreasonable demands are being placed on him or her.

Related mental health issues

Oppositional defiant disorder often occurs along with other behavioral or mental health problems such as:

  • Attention-deficit/hyperactivity disorder (ADHD)
  • Anxiety
  • Depression

The symptoms of ODD may be difficult to distinguish from those of other behavioral or mental health problems.

It's important to diagnose and treat any co-occurring illnesses because they can create or worsen irritability and defiance if left untreated. Additionally, it's important to identify and treat any related substance abuse and dependence. Substance abuse and dependence in children may be associated with irritability and changes in the child's usual personality.

 

 

I obviously did not write all of this important medical information myself, I compiled information from various medical websites and studies which I will site at the end for anyone who would like to further their research independently.  Listed above a pretty substantial list of things that my, and many other children and parents must wake up and conquer every day.  So often, I find that the level of comprehension on this subject is very limited among society, and even in families who have loved ones who must learn to live with these realities in their lives.  I am learning more and more that the struggle we, as people who do not have these, as some would refer to as 'disabilities' is far less challenging than the ones our friends, schoolmates, coworkers and loved ones who have to learn to function in society despite their differences.  I came across an article a few weeks ago that really put it all into perspective for me, I reposted it on facebook a few times, but I know most people didn't even consider it, not even the people that I wish had.  So I am going to copy the information from the article here and site it at the end as well.  It really explains, in a different perspective and a less 'medical terminology' heavy way, how we, as the support system, the loved ones and the teachers of these amazing, talented, intelligent, individuals, who are, at times a challenge can be the ones to help them grow to understand themselves and in turn to better function in a less tolerant society.



20 Things to Remember If You Love a Person with ADD


It’s a fact; a person with ADD is hard to love. You never know what to say. It’s like walking through a minefield. You tiptoe around; unsure which step (or word) will be the one that sets off an explosion of emotion. It’s something you try to avoid.

People who have ADD/ADHD are suffering. Life is more difficult for them than the average person. Everything is intense and magnified. Their brilliant minds are constantly in gear creating, designing, thinking and never resting. Imagine what it would feel like to have a merry-go-round in your mind that never stops spinning.

From emotional outbursts to polar opposite extremes; ADD presents several behaviors that can be harmful to relationships. ADD is a mysterious condition of opposites and extremes. For instance, when it comes to concentration, people with ADD cannot concentrate when they are emotional or when their thoughts are distracted. However, when they are interested in a specific topic, they zone in so deep that it’s hard to pull them out of that zone. Starting a project is a challenge; but stopping it is an even bigger challenge.

True love is unconditional, but ADD presents situations that test your limits of love. Whether it’s your child, boyfriend, girlfriend, spouse or soon-to-be spouse, ADD tests every relationship. The best way to bring peace into both your lives is to learn a new mindset to deal with the emotional roller-coaster that ADD brings all-day-every-day.


Understanding what a person with ADD feels like will help you become more patient, tolerant, compassionate, and loving. Your relationships will become more enjoyable and peaceful. This is what goes on in the mind of a person with ADD/ADHD:

1. They have an active mind

The ADD brain doesn’t stop. There’s no on/off switch. There are no brakes that bring it to a halt. It is a burden that one must learn to manage.

2. They listen but don’t absorb what is being said

A person with ADD will look at you, hear your words, watch your lips move, but after the first five words their mind is on a journey. They can still hear you speak, but their thoughts are in outer space. They are thinking about how your lips are moving or how your hair is out of place.

3. They have difficulty staying on task

Instead of keeping the focus on what’s in front of them, people with ADD are staring at the colors in the painting on the wall. Like walking through a labyrinth, they start moving in one direction, but keep changing directions to find the way out.

4. They become anxious easily

As deep thinkers, they are sensitive to whatever is going on around them. Being in a noisy restaurant can sound like you are standing in the front row at a Metallica concert. A depressing news snippet can set them into end-of-the-world mode.

 

5. They can’t concentrate when they are emotional

If there is something worrisome going on, or if they are upset, a person with ADD cannot think of anything else. This makes concentration on work, conversation, and social situations almost impossible.

6. They concentrate too intensely

When the doors of their mind open, the person with ADD dives in like a scuba diver jumping into the deep ocean.

7. They have difficulty stopping a task when they are in the zone

And under the deep ocean is where they stay for hours. Even when their oxygen is running low, if they are enjoying the view, they won’t come up for air until they’re almost out of oxygen.

8. They are unable to regulate their emotions

For a person with ADD, their emotions are flying wild, out of proportion and cannot be contained. The tangled wires in their brilliant brains make thought and feelings difficult to process. They need extra time to get their systems up and running properly.

9. They have verbal outbursts

Their intense emotions are hard to regulate. Since they impulsively say whatever they think, they often say things they later regret. It’s almost impossible for them to edit their words before they release them.

10. They have social anxiety

Feeling uncomfortable knowing that they are different, people with ADD are often uncomfortable in social situations. They are afraid they will say something foolish or react inappropriately. Holding back feels safer.

11. They are deeply intuitive

For people with ADD, the surface is an invisible exterior that they penetrate. They see beyond it. This is the most enjoyable aspect of ADD. This inspirational trait is what makes creative geniuses. Inventors, artists, musicians, and writers thrive in this zone.

12. They think out of the box

Another wonderful aspect of ADD is that because they think differently, their abstract minds see solutions to problems that the concrete thinker cannot see.

13. They are impatient and fidgety

Annoyed easily, wanting things to happen immediately, and constantly playing with their phones, twirling their hair, or bouncing their leg up and down; a person with ADD needs constant motion. It’s a calming Zen activity for them.

14. They are physically sensitive

Pencils feel heavy in their hand. Fibers in fabric that most people wouldn’t feel can be itchy. Beds are bumpy. Food has textures you can’t imagine. Like The Princess and the Pea, they can feel a pea under twenty mattresses.

15. They are disorganized

Piles are their favorite method of organizing. Once a task is complete, papers related to it are placed in a pile, where they stay until the piles grow too high. That’s when the person with ADD becomes overwhelmed, frustrated, and cleans up. People with ADD have to be careful to not become hoarders. It’s hard for a person with ADD to keep things in order because their brain doesn’t function in an orderly manner.

16. They need space to pace

When talking on the phone or having a conversation, people with ADD think better when they are in motion. Movement is calming and brings clarity to their thoughts.

17. They avoid tasks

Making decisions or completing tasks on time is a struggle. Not because they are lazy or irresponsible, but because their minds are full of options and possibilities. Choosing one can be problematic. It’s easy to avoid making decisions because they are over-thinkers. They obsess and dwell in the depths of their own minds.

18. They can’t remember simple tasks

Another paradoxical trait of ADD is memory. People with ADD can’t remember to pick up their clothes at the cleaners, milk at the grocery store, or appointments. On the other hand; they remember every comment, quote, and phone number they heard during the day. No matter how many post-its or calendar reminders they set; their distracted mind is always elsewhere. Visible items are easier to remember. That’s why they have fifteen windows open on their desktop.

19. They have many tasks going on at the same time

Due to the constant activity in their mind, once a task is finished, they are ready to move on to the next task without closing up the prior task. The more going on at once, the better. Multi-tasking is one of their favorite activites.

20. They are passionate about everything they do

The emotions, thoughts, words, and touch of a person with ADD is powerful. Everything is magnified. This is a blessing when channeled properly. When a person with ADD does something, they do it with their heart and soul. They give it all they’ve got. They are intense, perceptive, and deep. This quality is what makes the person with ADD so lovable.

Basically, a person with ADD/ADHD has trouble controlling their impulses. They also have many awesome qualities that you will enjoy once you understand how they think and feel. Compassion, empathy and patience will carry you through the most difficult times. It’s important to take extra care of yourself; take alone time regularly, do what you enjoy, find a support group, a therapist or a compassionate wise friend, take frequent vacations, meditate, find hobbies and your own passion. Most of all, learn how to breathe.

Some of the greatest inventors, artists, musicians, entrepreneurs, and writers had ADD/ADHD. They succeeded because they had a loved one just like you supporting them through their daily struggles. Replace your anger with compassion. Realize how they struggle to do what comes easy to you. Think of the ADD brain, as one with electrical wiring in the wrong circuits. Next time you think that they are lazy, irresponsible, disorganized, and avoiding responsibilities; try to remember how hard they have to work extra hard to achieve a simple task.

Yes, ADD/ADHD people are hard to love, but once you understand the burden they are carrying, your heart will open up. Love and compassion will take the place of anger. You will see into their sweet and good soul.

 

If you took the time to invest in reading this for me today, I really appreciate you and thank you.  I can only hope that this helps some of us understand what life is like not just for those of us that love someone with this learning disability, but offers a glimpse into the mind and hearts of those who live with it every day.  



References:

http://www.lifehack.org/articles/lifestyle/20-things-remember-you-love-person-with-add.html?dgs=2


http://www.mayoclinic.org/diseases-conditions/oppositional-defiant-disorder/basics/symptoms/con-20024559


http://www.nimh.nih.gov/health/topics/attention-deficit-hyperactivity-disorder-adhd/index.shtml#part7

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